Our Sweet Waverly Maeve

Wow, I can’t believe we are in this final stretch! I’m so happy our baby girl is staying strong and still with us. The OB doctor I was originally seeing said she would most likely die at 26 weeks. Well here we are, week 28. I’m praying we can make it as close to 40 weeks as possible. I really don’t have any updates. I had a regular OB appointment on 5/23, Waverly’s heart rate was a strong 149. I also had the beloved glucose test ordered which I took the other day. I’d like to look back on this second trimester. With Maverick I really enjoyed the 2nd trimester. The little morning sickness I had was gone, I had my energy back, I had a belly but wasn’t uncomfortable, I knew the gender so I started buying clothes, nursery decor and registering for his baby shower. This time around, things were different. We found out Waverly’s gender at 9 weeks 6 days. I was estatic she was a girl. I immediately started to look at paint colors, the cutest bows and clothes. When I hit the 12 week mark,...

We had our first visit with CHOP today bright and early at 6:30am. We arrived, got registered and were called back for an extensive ultrasound (3 hours long!). All of Waverly’s bones were measured, every bone in her body. All of her organs, all of her blood flow, every ounce of her being was measured. Literally, they did not leave one bit of her body unmeasured. We then went for a fetal echocardiogram which was about 20-30 minutes long. We then met with a wonderful genetic counselor, Erica. We went over our family history and talked about osteogenesis imperfecta. She answered any genetic questions we had and provided much reassurance. Lastly, we met with a maternal fetal medicine doctor, a student and our nurse coordinator. We all sat down and talked about the findings of the day. (They also asked us if we knew the gender and if we had a name picked out... how nice is that??). Anyways, our doctor went over the types of OI and told us based off their findings it’s type II. All of her...

Today started off with a meeting at a funeral home. It was important to me that Jim and I can come to an agreement on what our plan for a funeral was. I know it sounds morbid, how do you plan a funeral while your little baby is kicking around inside you? But the meeting was oddly peaceful. We were not forced to buy anything, all of our questions were answered and Jim and I were able to agree on what we plan on doing. Of course we are not denying the fact that miracles happen, but it is a lot easier to plan this stuff out while your mind is in a good place. The funeral director was so compassionate and so extremely professional. Some of our decisions will have to wait until Waverly is born, depending on her circumstances (and how we will be feeling). But for now, we decided on the basics. The day ended with an ultrasound at a local 3D/4D ultrasound place (Bellyssimo), I truly love it there. It’s so nice to be able to see your baby on the screen and not see anything medically wrong, all...

Yesterday I had my usual OB appointment. I was a little anxious for this appointment. The last time I saw my OB we talked about what the plan was and when I told him we planned on continuing the pregnancy, he asked if I still wanted to hear the heartbeat at each appointment. Ever since he said that, I was not looking forward to seeing him again. I wanted to give him another chance though since I really liked him while pregnant with Maverick. So yesterday’s appointment was probably 3 minutes long. Listened to the heartbeat, asked when my next ultrasound was, told me to come back in 3 weeks and sent me on my way. Although I was annoyed about the quickness of the appointment, I really didn’t mind. I was more concerned about my ultrasound appointment. That’s where I had a lot of questions. Today was another growth ultrasound. I had a little notepad filled with questions and specific measurements I wanted.... this was the first scan since getting the OI diagnosis so I was able to resear...